{"product_id":"life-quality-outcomes-in-children-and-young-people-with-neurological-and-developmental-conditions-isbn-9781908316585","title":"Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions","description":"\u003cb\u003eClinics in Developmental Medicine\u003c\/b\u003e  \u003cp\u003eHealth care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications.\u003c\/p\u003e \u003cp\u003eReadership:\u003c\/p\u003e \u003cul\u003e \u003cli\u003eHealth care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons.\u003c\/li\u003e \u003cli\u003eFrontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible.\u003c\/li\u003e \u003cli\u003eStudents in the health professions and others in related fields (such as social work).\u003c\/li\u003e \u003c\/ul\u003e  \u003cp\u003eChapter 1: Setting the Stage: Introduction and general overview. \u003ci\u003eGabriel Ronen and Peter Rosenbaum, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eSection A: Concepts and perspectives of outcomes\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e(i) Contemporary Concepts in Health, Disability and Life Quality\u003c\/p\u003e \u003cp\u003eChapter 2: Concepts and perspectives on ‘health’ and ‘outcomes’. \u003ci\u003eGabriel Ronen and Peter Rosenbaum, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 3: ‘Quality of life’ and ‘health-related quality of life’.\u003ci\u003eRebecca Renwick, University of Toronto\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 4: ‘Health status’ and the usefulness of the ICF framework: clinical and program perspectives\u003ci\u003eOlaf Kraus de Camargo \u0026amp; Nora Fayed, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 5: The role of ‘participation’ in the lives of children and youth with neurodevelopmental conditions.\u003ci\u003eDana Anaby McGill University \u0026amp; Mary Law, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e(ii) Life Issues in Children and Young People with neurodevelopmental conditions.\u003c\/p\u003e \u003cp\u003eChapter 6: A developmental perspective on childhood neurological conditions. \u003ci\u003ePeter Rosenbaum and Gabriel Ronen\u003c\/i\u003e, \u003ci\u003eMcMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 7: Psychological impact of living with a neurodevelopmental condition. \u003ci\u003eDavid Dunn \u0026amp; Michelle Thorne\u003c\/i\u003e \u003ci\u003eIndiana University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 8: The characteristics of peer relations among children with neurological and developmental conditions. \u003ci\u003eTracy Vaillancourt,\u003c\/i\u003e\u003ci\u003eJennifer Hepditch, Irene Vitoroulis, Amanda Krygsman, Christine Blain-Arcaro, University of Ottawa \u0026amp; Patricia McDougall, St. Thomas More College, University of Saskatchewan\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 9: Romantic relationships and sexual experiences. \u003ci\u003eDiana Wiegerink \u0026amp; Marij Roebroeck Erasmus University Rotterdam\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e(iii) Contextual Factors in the Lives of Children and Young People with neurodevelopmental conditions.\u003c\/p\u003e \u003cp\u003eChapter 10: Contextual facilitators: Resilience, Coping and Sense of Coherence. \u003ci\u003eKim Schonert-Reichl University of British Columbia \u0026amp; Veronica Smith University of Alberta\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 11: The family does matter! \u003ci\u003eLucyna Lach, McGill University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 12: Stigma: A pervasive contextual barrier. \u003ci\u003eAnn Jacoby, University of Liverpool \u0026amp; Joan Austin Indiana University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 13: Advancing the rights of children with neurodevelopmental conditions. \u003ci\u003eSheila Jennings York University\u003c\/i\u003e, \u003ci\u003eToronto\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eSection B: Quality of life outcomes: Methods and measurements\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eChapter 14: Measurement concepts, standards and perspectives of patient-reported outcomes. \u003ci\u003eAileen Davis, University of Toronto\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 15: Practical considerations in choosing Health, Quality of life and health-related quality of life Scales for Children.  \u003ci\u003eNora Fayed, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 16: Complexity in the lives of children and young people with neurological and developmental conditions: The role of qualitative research. \u003ci\u003eDebra Stewart McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 17: Understanding self and proxy ratings. \u003ci\u003eGabriel Ronen \u0026amp; Davis Streiner, McMaster\u003c\/i\u003e \u003ci\u003eUniversity\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 18: Ethics of patient reported outcome measures. \u003ci\u003eDavid Streiner, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eSection C: Opportunities to improve quality life outcomes \u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e(i) Education and Disability\u003c\/p\u003e \u003cp\u003eChapter 19: Knowledge translation: Accessing and using the best evidence to improve child and family outcome. \u003ci\u003eIona Novak\u003c\/i\u003e \u003ci\u003eUniversity of Notre Dame Sydney, Australia,\u003c\/i\u003e \u003ci\u003eDianne Russell McMaster University,\u003c\/i\u003e \u003ci\u003eand Marjolijn Ketelaar University Medical Center Utrecht and Rehabilitation Center De Hoogstraat Utrecht, the Netherlands\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 20: Interprofessional Education and Collaboration: Key Approaches for Improving Care. \u003ci\u003eScott Reeves University of California, San Francisco\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 21: A specialized learning environment can enhance the outcomes of children with cognitive impairment. \u003ci\u003eElizabeth Kerr Hospital for Sick Children Toronto \u0026amp; Miriam Riches OISE-University of Toronto\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e(ii) Growing into Adulthood with a Childhood Neurodevelopmental Condition.\u003c\/p\u003e \u003cp\u003eChapter 22: Transition to adulthood: enhancing health and quality of life. \u003ci\u003eJan Willem Gorter McMaster University, and Marij Roebroeck Erasmus University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eChapter 23: Why we need adult specialists for people with childhood onset neurodevelopmental conditions. \u003ci\u003eBernard Dan, Free University of Brussels \u003cbr\u003e \u003cbr\u003e \u003c\/i\u003e Chapter 24: Longitudinal approaches to populations with childhood onset neurodevelopmental conditions: Australian experience with Rett syndrome. \u003ci\u003eJenny Downs \u0026amp;\u003c\/i\u003e\u003ci\u003eHelen Leonard, University of Western Australia\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e(iii) Youth, Disability and Society. \u003c\/p\u003e \u003cp\u003eChapter 25: Policies, Programs and Practices: The tensions about life quality outcomes. \u003ci\u003eGina Glidden, McGill University; \u0026amp; Rachel Birnbaum University of Western Ontario\u003cbr\u003e \u003cbr\u003e \u003c\/i\u003eChapter 26: What is the emerging role of parent and community organizations in health promotion? Primarily a UK experience. \u003ci\u003eChris Morris \u0026amp; Val Shilling, Medical School Exeter UK\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eSection D: Conclusions and future developments\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eChapter 27: The ICF and Life Quality Outcomes. \u003ci\u003ePeter Rosenbaum and Gabriel Ronen, McMaster University\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eGabriel M Ronen\u003c\/b\u003e, MD, MSc (health research methodology), FRCP(C) (paediatric neurology) Professor of Paediatrics, McMaster University, Hamilton, Ontario, Canada\u003cbr\u003eAs a paediatric neurologist he has a wide range of experience with children and youth with neurological conditions. He has been an active clinician, researcher, teacher and mentor with a particular interest in children with epilepsy.\u003c\/p\u003e \u003cp\u003e\u003cb\u003ePeter L Rosenbaum\u003c\/b\u003e, MD, CM, FRCP(C) Professor of Paediatrics, CanChild Centre for Childhood Disability Research, IAHS Building Room 408, McMaster University, 1400 Main Street West, Hamilton ON L8S 1C7 Canada\u003cbr\u003eResearch Chair in Childhood Disability Research, Mentoring and Dissemination As a Developmental Paediatrician he has had a wide-ranging experience of childhood disability, with a particular interest in cerebral palsy. For the past 40 years he has been an active clinician, researcher, teacher, mentor, author and editor. In 1989 he co-founded CanChild Centre for Childhood Disability Research and in 2000 he was recognized with the Canadian Paediatric Society's highest award, the Ross Award. Honorary degree Doctor of Science from Universite Laval (2005). In 2007 he was awarded the AACPDM's first Mentorship Award. He is the North American Editor for \u003ci\u003eDevelopmental Medicine and Child Neurology\u003c\/i\u003e journal from Mac Keith Press.\u003c\/p\u003e","brand":"Mac Keith Press","offers":[{"title":"Default Title","offer_id":47989528690917,"sku":"NP9781908316585","price":129.0,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/1842\/7735\/files\/9781908316585.jpg?v=1761784473","url":"https:\/\/k12savings.com\/products\/life-quality-outcomes-in-children-and-young-people-with-neurological-and-developmental-conditions-isbn-9781908316585","provider":"K12savings","version":"1.0","type":"link"}