{"product_id":"providing-support-at-home-for-children-and-young-people-who-have-complex-health-needs-isbn-9780470517314","title":"Providing Support at Home for Children and Young People who have Complex Health Needs","description":"\u003ci\u003eProviding Support at Home for Children and Young People who have Complex Health Needs\u003c\/i\u003e discusses elements of providing support in the home, which influence the quality of provision. This includes: the rationale for providing support at home, the child being central to the provision of support, taking into account the needs of the whole family, working closely with parents, working in the family home, choices and rights, supporting adolescents, team working, ethical issues, political and organisational issues. Case studies are used to illustrate the points raised. \u003cp\u003ePreface xi\u003c\/p\u003e \u003cp\u003e\u003cb\u003e1 Children and Young People who have Complex and Continuing Health Needs 1\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eDefinitions 1\u003c\/p\u003e \u003cp\u003eProviding Care at Home 4\u003c\/p\u003e \u003cp\u003eEconomic Issues 6\u003c\/p\u003e \u003cp\u003eThe Best Option for Individuals 7\u003c\/p\u003e \u003cp\u003eAchieving Home Care 8\u003c\/p\u003e \u003cp\u003e\u003cb\u003e2 Putting the Child or Young Person First 10\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eQuality of Life 11\u003c\/p\u003e \u003cp\u003eThe Child or Young Person’s Priorities, Preferences and Choices 12\u003c\/p\u003e \u003cp\u003eCommunication 14\u003c\/p\u003e \u003cp\u003ePlay 18\u003c\/p\u003e \u003cp\u003eSocial Opportunities and Leisure Activities 21\u003c\/p\u003e \u003cp\u003eEducation 22\u003c\/p\u003e \u003cp\u003eThe Right to Privacy 26\u003c\/p\u003e \u003cp\u003eDeveloping Independence 27\u003c\/p\u003e \u003cp\u003eSummary 28\u003c\/p\u003e \u003cp\u003e\u003cb\u003e3 The Child or Young Person as a Part of the Family 29\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eFamily 29\u003c\/p\u003e \u003cp\u003eParenting 30\u003c\/p\u003e \u003cp\u003eBeing the Parent of a Child who has Complex Needs 32\u003c\/p\u003e \u003cp\u003eExpert Parents 35\u003c\/p\u003e \u003cp\u003eThe Impact of having a Child who has Complex Needs 37\u003c\/p\u003e \u003cp\u003eSocial Opportunities 40\u003c\/p\u003e \u003cp\u003eEmployment and Finances 42\u003c\/p\u003e \u003cp\u003eRelationships Between Parents 43\u003c\/p\u003e \u003cp\u003eEffects on the Family 44\u003c\/p\u003e \u003cp\u003eThe Impact of the Child’s Needs on their Siblings 47\u003c\/p\u003e \u003cp\u003eThe Impact of the Child’s Needs on the Extended Family 49\u003c\/p\u003e \u003cp\u003eSummary 50\u003c\/p\u003e \u003cp\u003e\u003cb\u003e4 Working with Parents 52\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eNegotiation 52\u003c\/p\u003e \u003cp\u003eBuilding Relationships 54\u003c\/p\u003e \u003cp\u003eRespect 56\u003c\/p\u003e \u003cp\u003eRespect for Parents’ Responsibility for their Child 57\u003c\/p\u003e \u003cp\u003eTrust 58\u003c\/p\u003e \u003cp\u003eBoundaries in Professional Relationships 60\u003c\/p\u003e \u003cp\u003eWorking with Parents who are Experts 63\u003c\/p\u003e \u003cp\u003eEnabling and Supporting Parents to Access and Accept Support 66\u003c\/p\u003e \u003cp\u003eUnderstanding and Working with the Family’s Expectations 67\u003c\/p\u003e \u003cp\u003eSummary 69\u003c\/p\u003e \u003cp\u003e\u003cb\u003e5 Working in the Family Home 70\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eBeing a Visitor in One’s own Workplace 70\u003c\/p\u003e \u003cp\u003eIntrusion Versus Support 71\u003c\/p\u003e \u003cp\u003eStaff Safety and Well-being in the Workplace 76\u003c\/p\u003e \u003cp\u003eConfidentiality 79\u003c\/p\u003e \u003cp\u003eSummary 81\u003c\/p\u003e \u003cp\u003e\u003cb\u003e6 Supporting Young People 83\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eDeveloping Independence 83\u003c\/p\u003e \u003cp\u003eRisk Taking 86\u003c\/p\u003e \u003cp\u003eDeveloping Peer Relationships 89\u003c\/p\u003e \u003cp\u003eImage and Identity 90\u003c\/p\u003e \u003cp\u003eSexuality and Sexual Expression 91\u003c\/p\u003e \u003cp\u003eFurther Education 94\u003c\/p\u003e \u003cp\u003ePreparing for Employment 95\u003c\/p\u003e \u003cp\u003eTransition to Adult Services 96\u003c\/p\u003e \u003cp\u003eSummary 99\u003c\/p\u003e \u003cp\u003e\u003cb\u003e7 Grief, Loss and Bereavement 100\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eGrief and Loss for Children and Young People 100\u003c\/p\u003e \u003cp\u003eSources of Loss for Parents 104\u003c\/p\u003e \u003cp\u003eSources of Loss for other Family Members 109\u003c\/p\u003e \u003cp\u003eTheories of Grief, Loss and Bereavement 110\u003c\/p\u003e \u003cp\u003eChildren and Young People’s Concepts of Death 112\u003c\/p\u003e \u003cp\u003eFamilies Living with Loss 115\u003c\/p\u003e \u003cp\u003eSupporting Families who Experience Loss 117\u003c\/p\u003e \u003cp\u003eLoss for Healthcare Staff 119\u003c\/p\u003e \u003cp\u003eSummary 120\u003c\/p\u003e \u003cp\u003e\u003cb\u003e8 Choices and Rights 121\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eChildren’s Rights 121\u003c\/p\u003e \u003cp\u003eAutonomy 122\u003c\/p\u003e \u003cp\u003eAutonomy and Healthcare 125\u003c\/p\u003e \u003cp\u003eCompetence in Decision Making 127\u003c\/p\u003e \u003cp\u003eConsent 129\u003c\/p\u003e \u003cp\u003eEmpowerment 131\u003c\/p\u003e \u003cp\u003eAdvocacy 133\u003c\/p\u003e \u003cp\u003eChild Protection 136\u003c\/p\u003e \u003cp\u003eEquality and Disability Rights 138\u003c\/p\u003e \u003cp\u003eSummary 139\u003c\/p\u003e \u003cp\u003e\u003cb\u003e9 Ethical Issues Involved in Supporting Children, Young People and their Families 141\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eMorals and Ethics 142\u003c\/p\u003e \u003cp\u003ePromoting Health 142\u003c\/p\u003e \u003cp\u003eEthical Principles 145\u003c\/p\u003e \u003cp\u003eDuties of Healthcare Professionals 151\u003c\/p\u003e \u003cp\u003eFidelity 154\u003c\/p\u003e \u003cp\u003eResponsibility 154\u003c\/p\u003e \u003cp\u003eSummary 155\u003c\/p\u003e \u003cp\u003e\u003cb\u003e10 Organisational Issues 157\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eSupport 157\u003c\/p\u003e \u003cp\u003eDetermining what is Needed 159\u003c\/p\u003e \u003cp\u003eJoined-up Assessment 161\u003c\/p\u003e \u003cp\u003eCollaborative Working 162\u003c\/p\u003e \u003cp\u003eThe Key Worker 166\u003c\/p\u003e \u003cp\u003eOrganising Care Packages 167\u003c\/p\u003e \u003cp\u003eIndependent Funding Options 169\u003c\/p\u003e \u003cp\u003eShort-Break Services 170\u003c\/p\u003e \u003cp\u003eSummary 172\u003c\/p\u003e \u003cp\u003e\u003cb\u003e11 Working with Children, Young People and Their Families 174\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eSeeing the Child or Young Person First 174\u003c\/p\u003e \u003cp\u003eThe Child or Young Person as a Part of their Family 176\u003c\/p\u003e \u003cp\u003eWorking in the Family Home 177\u003c\/p\u003e \u003cp\u003eSupporting Young People 178\u003c\/p\u003e \u003cp\u003eDecision Making and Finite Resources 179\u003c\/p\u003e \u003cp\u003eAppendix: Useful Resources 181\u003c\/p\u003e \u003cp\u003eReferences 185\u003c\/p\u003e \u003cp\u003eIndex 199\u003c\/p\u003e  \u003cp\u003e\u003cstrong\u003eJaquelina Hewitt-Taylor, PhD BA (Hons) RSCN RGN\u003c\/strong\u003e\u003cbr\u003eJaqui Hewitt-Taylor works as a Practice Development Fellow for Children with Complex and Continuing Health Needs. Her work includes developing and evaluating education and training opportunities for staff (including health care support workers, pre registration student nurses and Registered Nurses).   An increasing number of children and young people live with complex and continuing health needs, which often necessitate ongoing support from health and social care staff.  Ideally, such support should be provided in the child’s home, in manner which enables them and their families to achieve the highest quality of life.   \u003c\/p\u003e\u003cp\u003e\u003ci\u003eProviding Support at Home for Children and Young People who have Complex Health Needs\u003c\/i\u003e explores general aspects of supporting children who have complex and continuing health needs and their families in their own homes, rather than discussing specific disorders, diseases, treatments or interventions.  The text looks at working closely with parents, working in the family home, supporting young people who have complex and continuing health needs,  understanding grief and loss,  respecting the rights of children and young people and the ethical issues involved in supporting children, young people and their families. \u003c\/p\u003e \u003cul type=\"disc\"\u003e \u003cli\u003e\u003ci\u003eOther titles of interest:\u003c\/i\u003e\u003c\/li\u003e \u003c\/ul\u003e \u003cp\u003e\u003ci\u003eCaring for Children with Complex Needs in the Community\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003ci\u003eJean Teare\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003ci\u003e1-4051-5177-3\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003ci\u003eNursing Care of Children and Young People with Chronic Illness\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003ci\u003eFay Valentine and Lesley Lowes\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e\u003ci\u003e1-4051-4402-5\u003c\/i\u003e\u003c\/p\u003e","brand":"Wiley","offers":[{"title":"Default Title","offer_id":47989881831653,"sku":"NP9780470517314","price":65.95,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/1842\/7735\/files\/9780470517314.jpg?v=1761785777","url":"https:\/\/k12savings.com\/es\/products\/providing-support-at-home-for-children-and-young-people-who-have-complex-health-needs-isbn-9780470517314","provider":"K12savings","version":"1.0","type":"link"}