{"product_id":"handbook-of-service-user-involvement-in-nursing-and-healthcare-research-isbn-9781444334722","title":"Handbook of Service User Involvement in Nursing and Healthcare Research","description":"This book fills an important niche in the market providing practical expert advice on the involvement of service users - patients, carers and the public - in nursing and healthcare research.   An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved.  \u003cp\u003eWith illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. \u003ci\u003eThe Handbook of Service User Involvement in Nursing \u0026amp; Healthcare Research\u003c\/i\u003e introduces a wide range of key issues, including:\u003c\/p\u003e \u003cul\u003e \u003cli\u003e \u003cdiv\u003e\n\u003cb\u003e\u003ci\u003eWhy?\u003c\/i\u003e\u003c\/b\u003e Why should researchers involve service users?\u003c\/div\u003e \u003c\/li\u003e \u003cli\u003e \u003cdiv\u003e\n\u003cb\u003e\u003ci\u003eHow\u003c\/i\u003e\u003c\/b\u003e? How can researchers and service users work together successfully and productively?\u003c\/div\u003e \u003c\/li\u003e \u003cli\u003e \u003cdiv\u003e\n\u003cb\u003e\u003ci\u003eWho?\u003c\/i\u003e\u003c\/b\u003e Who chooses to become involved in research? How are issues of representation and diversity addressed?\u003c\/div\u003e \u003c\/li\u003e \u003cli\u003e \u003cdiv\u003e\n\u003ci\u003e\u003cb\u003eWhen?\u003c\/b\u003e\u003c\/i\u003e At what stage should service users be involved in the research process?\u003c\/div\u003e \u003c\/li\u003e \u003c\/ul\u003e  Contributors viii  \u003cp\u003eAbout the authors x\u003c\/p\u003e \u003cp\u003ePreface xii\u003c\/p\u003e \u003cp\u003eStructure of the book xv\u003c\/p\u003e \u003cp\u003eAcknowledgements xviii\u003c\/p\u003e \u003cp\u003e\u003cb\u003ePart I Preparing 1\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003e1 Perspectives and expectations 3\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eApproaching service user involvement 4\u003c\/p\u003e \u003cp\u003ePolitical and research contexts of involvement 7\u003c\/p\u003e \u003cp\u003eHistorical roots and social movements 8\u003c\/p\u003e \u003cp\u003ePerspectives of service user involvement 12\u003c\/p\u003e \u003cp\u003eWhat is known about the impact of involvement? 14\u003c\/p\u003e \u003cp\u003eCurrent challenges 15\u003c\/p\u003e \u003cp\u003e\u003cb\u003e2 Concepts 18\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eService users 19\u003c\/p\u003e \u003cp\u003eInvolvement 21\u003c\/p\u003e \u003cp\u003eRepresentation 22\u003c\/p\u003e \u003cp\u003eExperiential knowledge 24\u003c\/p\u003e \u003cp\u003eEmpowerment 25\u003c\/p\u003e \u003cp\u003eParticipation 26\u003c\/p\u003e \u003cp\u003eModels of involvement 27\u003c\/p\u003e \u003cp\u003eA theoretical framework for approaching service user involvement in research 30\u003c\/p\u003e \u003cp\u003e\u003cb\u003e3 Designing involvement 36\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eDeciding who to involve 37\u003c\/p\u003e \u003cp\u003eBuilding in opportunities for involvement 40\u003c\/p\u003e \u003cp\u003eResearch methods and approaches to involvement 42\u003c\/p\u003e \u003cp\u003ePlanning involvement 48\u003c\/p\u003e \u003cp\u003ePayments 48\u003c\/p\u003e \u003cp\u003eResearch ethics and governance 54\u003c\/p\u003e \u003cp\u003e\u003cb\u003e4 Working relationships 59\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eMaking connections 60\u003c\/p\u003e \u003cp\u003eWorking environments 61\u003c\/p\u003e \u003cp\u003eRoles and responsibilities 66\u003c\/p\u003e \u003cp\u003eLegal and ethical issues 67\u003c\/p\u003e \u003cp\u003eTraining and support 68\u003c\/p\u003e \u003cp\u003eCommunication 70\u003c\/p\u003e \u003cp\u003eFeedback and reflection 72\u003c\/p\u003e \u003cp\u003eEmbedding service user involvement 72\u003c\/p\u003e \u003cp\u003e\u003cb\u003ePart II Learning 77\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003e5 Patients, clients and carers 79\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003ePatients who are receiving health care 80\u003c\/p\u003e \u003cp\u003ePeople who are very sick 83\u003c\/p\u003e \u003cp\u003ePeople with rare clinical conditions 85\u003c\/p\u003e \u003cp\u003ePeople who find it difficult to access services 85\u003c\/p\u003e \u003cp\u003ePeople who do not have the capacity to consent 87\u003c\/p\u003e \u003cp\u003eCarers 89\u003c\/p\u003e \u003cp\u003e\u003cb\u003e6 Involvement over the life course 93\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eChildren and their parents 93\u003c\/p\u003e \u003cp\u003eSchool-age children 97\u003c\/p\u003e \u003cp\u003eYoung people 100\u003c\/p\u003e \u003cp\u003eAdults 102\u003c\/p\u003e \u003cp\u003eOlder people 103\u003c\/p\u003e \u003cp\u003e\u003cb\u003e7 Seldom-heard groups 106\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eInvolving seldom-heard groups 107\u003c\/p\u003e \u003cp\u003ePeople with physical disabilities 108\u003c\/p\u003e \u003cp\u003eThe deaf and people who are hard of hearing 110\u003c\/p\u003e \u003cp\u003ePeople who are blind or partially sighted 111\u003c\/p\u003e \u003cp\u003ePeople with learning disabilities 111\u003c\/p\u003e \u003cp\u003ePeople with degenerative cognitive impairment 113\u003c\/p\u003e \u003cp\u003ePeople with mental health problems 113\u003c\/p\u003e \u003cp\u003eBlack and minority ethnic groups 116\u003c\/p\u003e \u003cp\u003e\u003cb\u003e8 Service user-led research 120\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003ePersonal health research 121\u003c\/p\u003e \u003cp\u003eVolunteer networks 121\u003c\/p\u003e \u003cp\u003eService user-led organisations 123\u003c\/p\u003e \u003cp\u003eCharities and not-for-profit organisations 125\u003c\/p\u003e \u003cp\u003eExperienced service user representatives 127\u003c\/p\u003e \u003cp\u003eAcademic service user researchers 128\u003c\/p\u003e \u003cp\u003e\u003cb\u003ePart III Evaluating 133\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003e9 Quality 135\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eIndicators of successful involvement 136\u003c\/p\u003e \u003cp\u003eDocumenting service user involvement work 137\u003c\/p\u003e \u003cp\u003eUsing reflective techniques 139\u003c\/p\u003e \u003cp\u003eReflexivity and service user involvement 142\u003c\/p\u003e \u003cp\u003eQuality experiences of involvement 143\u003c\/p\u003e \u003cp\u003eQuality environments for involvement 146\u003c\/p\u003e \u003cp\u003e\u003cb\u003e10 Impact 151\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eWhy we need to know about impact 152\u003c\/p\u003e \u003cp\u003eDesigning an assessment of impact 153\u003c\/p\u003e \u003cp\u003eRecognising impact 154\u003c\/p\u003e \u003cp\u003eRecording impact 157\u003c\/p\u003e \u003cp\u003eReporting impact 161\u003c\/p\u003e \u003cp\u003e\u003cb\u003e11 International perspectives 165\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eEurope 166\u003c\/p\u003e \u003cp\u003eThe USA 168\u003c\/p\u003e \u003cp\u003eCanada 169\u003c\/p\u003e \u003cp\u003eAustralia and New Zealand 170\u003c\/p\u003e \u003cp\u003eDeveloping countries 172\u003c\/p\u003e \u003cp\u003e\u003cb\u003e12 Conclusion 176\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eSummary conclusions 177\u003c\/p\u003e \u003cp\u003eService user involvement enhancing evidence-based practice 178\u003c\/p\u003e \u003cp\u003eEnriching professional education 179\u003c\/p\u003e \u003cp\u003eTeaching service user involvement in research 180\u003c\/p\u003e \u003cp\u003eDeveloping professional roles 184\u003c\/p\u003e \u003cp\u003eSecuring service user’s commitment to involvement 185\u003c\/p\u003e \u003cp\u003eFurther reading 188\u003c\/p\u003e \u003cp\u003eWeb-based resources 189\u003c\/p\u003e \u003cp\u003eIndex 191\u003c\/p\u003e  \u003cp\u003e“The book is clearly written with pertinent examples drawn from real life. The index is clear and easy to use.”  (\u003ci\u003eNursing Times\u003c\/i\u003e, 17 September 2012)\u003c\/p\u003e \u003cp\u003e \u003c\/p\u003e \u003cp\u003e \u003c\/p\u003e \u003cp\u003e\u003cb\u003eElizabeth Morrow\u003c\/b\u003e is Research Associate at the National Nursing Research Unit, Kings College London\u003c\/p\u003e \u003cp\u003e\u003cb\u003eDr Annette Boaz\u003c\/b\u003e is Lecturer in Translational Research at the Division of Health and Social Care Research, King’s College, London\u003c\/p\u003e \u003cp\u003e\u003cb\u003eSally Brearley\u003c\/b\u003e is Chair of Health Link, (a not-for-profit organisation aimed at strengthening public influence on health (www.health-link,org.uk), and was former Chair of The Patients Forum (www.thepatientsforum.org.uk)\u003c\/p\u003e \u003cp\u003e\u003cb\u003eProfessor Fiona Mary Ross\u003c\/b\u003e is Dean of Faculty of Health and Social Care Sciences, Kingston University and St George’s, University of London\u003c\/p\u003e","brand":"Wiley-Blackwell","offers":[{"title":"Default Title","offer_id":47989342077157,"sku":"NP9781444334722","price":51.95,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/1842\/7735\/files\/9781444334722.jpg?v=1761783739","url":"https:\/\/k12savings.com\/es\/products\/handbook-of-service-user-involvement-in-nursing-and-healthcare-research-isbn-9781444334722","provider":"K12savings","version":"1.0","type":"link"}