{"product_id":"ethics-in-child-health-isbn-9781909962637","title":"Ethics in Child Health","description":"\u003cp\u003eHave you ever\u003c\/p\u003e \u003cul\u003e \u003cli\u003eWondered how to deal with a family that repeatedly fails to keep clinic appointments?\u003c\/li\u003e \u003cli\u003eDisagreed with colleagues over a proposed course of treatment for a child?\u003c\/li\u003e \u003cli\u003eConsidered ways to 'bump' a child on a waiting to speed up their assessment?\u003c\/li\u003e \u003c\/ul\u003e \u003cp\u003eThese are a few of the scenarios faced by clinicians in neurodisability on a daily basis. \u003ci\u003eEthics in Child Health\u003c\/i\u003e explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful \"Themes for Discussion\" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. \u003ci\u003eEthics in Child Health\u003c\/i\u003e offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.\u003c\/p\u003e \u003cdiv\u003e \u003cp\u003eIntroduction 1\u003c\/p\u003e \u003cp\u003eSECTION A: SETTING THE STAGE: ATTUNING MORAL AND ETHICAL THINKING\u003c\/p\u003e \u003cp\u003e1 A parent’s perspective on everyday ethics 7 \u003cbr\u003eJennifer Johannesen\u003c\/p\u003e \u003cp\u003e2 Present-day health and neurodevelopmental disability 17\u003cbr\u003ePeter L. Rosenbaum and Gabriel M. Ronen with contributions by Barbara J. Cunningham\u003c\/p\u003e \u003cp\u003e6 The importance of beliefs and relationships in the decision-making process 75 \u003cbr\u003eHoward Needelman and David Sweeney\u003c\/p\u003e \u003cp\u003e7 Humanism in the practice of neurodevelopmental disability: examples of challenges and opportunities 85\u003cbr\u003eGarey Noritz\u003c\/p\u003e \u003cp\u003e8 Truth with hope: ethical challenges in disclosing ‘bad’ diagnostic, prognostic and intervention information 97\u003cbr\u003eIona Novak, Marelle Thornton, Cathy Morgan, Petra Karlsson, Hayley Smithers-Sheedy and Nadia Badawi\u003c\/p\u003e \u003cp\u003eSECTION C: ETHICAL ISSUES IN ADDRESSING FAMILIES’ PRIORITIES\u003c\/p\u003e \u003cp\u003e9 Different perspectives, different priorities: using a strengths-based approach to gain trust and find common ground 111\u003cbr\u003eDinah S. Reddihough and Jane Tracy\u003c\/p\u003e \u003cp\u003e3 Can moral problems of everyday clinical practice ever be resolved? A proposal for integrative pragmatist approaches 33\u003cbr\u003eEric Racine\u003c\/p\u003e \u003cp\u003eSECTION B: EARLY DAYS, THE START OF THE DIFFERENT DEVELOPMENTAL JOURNEY\u003c\/p\u003e \u003cp\u003e4 Prenatal consultation: ethical challenges and proposed solutions 49\u003cbr\u003eJennifer Cobelli Kett, Hannah M. Tully and Dan Doherty\u003c\/p\u003e \u003cp\u003e5 Evidence-based neonatal neurology: decision-making in conditions of medical uncertainty 61\u003cbr\u003eIsabelle Chouinard, Eric Racine and Pia Wintermark\u003c\/p\u003e \u003cp\u003e10 The importance of patients’ and families’ narratives: developing a philosophy of care to support patient\/family goals 123\u003cbr\u003eJean C. Kunz Stansbury and Scott Schwantes\u003c\/p\u003e \u003cp\u003eSECTION D: RESPECTING SOCIAL AND CULTURAL VALUES\u003c\/p\u003e \u003cp\u003e14 Terminology in neurodevelopmental disability: is using stigmatizing language harmful? 161\u003cbr\u003eLisa Samson-Fang\u003c\/p\u003e \u003cp\u003e15 Everyday ethics in Rwanda: perspectives on hope, fatigue, death and regrowth 169\u003cbr\u003eEmily Esmaili and Christian Ntizimira\u003c\/p\u003e \u003cp\u003e16 When expectations diverge: addressing our cultural differences differently 177\u003cbr\u003eLaura S. Funkhouser with contributions by Suzanne Linett\u003c\/p\u003e \u003cp\u003e17 Service provision for hard-to-reach families: what are our responsibilities? 193\u003cbr\u003eMichelle Phoenix\u003c\/p\u003e \u003cp\u003e18 The obligation to report child abuse\/neglect is more complex than it seems 203\u003cbr\u003eLucyna M. Lach and Rachel Birnbaum\u003c\/p\u003e \u003cp\u003e11 The ethics of patient advocacy: bending the rules on behalf of patients 133\u003cbr\u003eRaymond Tervo and Paul J. Wojda\u003c\/p\u003e \u003cp\u003e12 Responding to requests for novel\/unproven alternative and complementary treatments 143\u003cbr\u003eEdward A. Hurvitz and Garey Noritz\u003c\/p\u003e \u003cp\u003e13 A miracle cure for neurological disability: balancing hype and hope for parents and patients in the absence of evidence-based recommendations 153\u003cbr\u003ePaul C. Mann, Russell P. Saneto and Sidney M. Gospe Jr.\u003c\/p\u003e \u003cp\u003e19 The dilemmas for siblings of children with disabilities: personal reflections on ethical challenges 215Peter Blasco\u003c\/p\u003e \u003cp\u003e20 Paying attention to parental mental health: is this our responsibility? 223\u003cbr\u003eDinah S. Reddihough and Elise Davis\u003c\/p\u003e \u003cp\u003eSECTION E: THERAPIES, REHABILITATION AND INTERVENTIONS\u003c\/p\u003e \u003cp\u003e21 Tensions regarding the processes associated with decision-making about intervention 233\u003cbr\u003eLora Woo, Eunice Shen and Elizabeth Russel\u003c\/p\u003e \u003cp\u003e22 Can’t you just do therapy? When there is disagreement about discharge from therapy 249\u003cbr\u003eJaney McGeary Farber and Harriet Fain-Tvedt\u003c\/p\u003e \u003cp\u003e23 Concurrent therapy in pediatric neurorehabilitation 259\u003cbr\u003eMarilyn Wright, Sandra Gaik and Kathleen Dekker\u003c\/p\u003e \u003cp\u003e24 Ethical considerations regarding surgical treatment of severe scoliosis in children with cerebral palsy 271\u003cbr\u003eM. Wade Shrader\u003c\/p\u003e \u003cp\u003eSECTION F: ETHICAL ISSUES IN SPECIFIC CONDITIONS AND CONTEXTS\u003c\/p\u003e \u003cp\u003e25 Considering best interest, quality of life, autonomy and personhood in the intensive care unit 279\u003cbr\u003eMichael A. Clarke\u003c\/p\u003e \u003cp\u003e26 How much is too much care? Interventions and life support in children with profound impairments and life-threatening conditions 291\u003cbr\u003eChristopher J. Newman and Eric B. Zurbrugg\u003c\/p\u003e \u003cp\u003e27 Discussing sudden unexpected death in newly diagnosed epilepsy 303\u003cbr\u003eJames J. Reese Jr. and Phillip L. Pearl\u003c\/p\u003e \u003cp\u003e28 Ethical challenges of diagnosing fetal alcohol spectrum disorder: when diagnosis has sociopolitical consequences 311\u003cbr\u003eIlona Autti-Rämö\u003c\/p\u003e \u003cp\u003eSECTION G: EMERGING INDEPENDENCE AND PREPARING FOR ADULTHOOD\u003c\/p\u003e \u003cp\u003e29 Growth and pubertal manipulation in children with neurodisabilities: what are the ethical implications? 323\u003cbr\u003eM. Constantine Samaan\u003c\/p\u003e \u003cp\u003e30 Independence in adulthood: ethical challenges in providing transitional care for young people with neurodevelopmental impairments 335\u003cbr\u003eJan Willem Gorter and Barbara E. Gibson\u003c\/p\u003e \u003cp\u003e31 Conservatorship in emerging adults: ethical and legal considerations 349\u003cbr\u003eHenry G. Chambers\u003c\/p\u003e \u003cp\u003eEpilogue: Looking back to the future 353\u003cbr\u003eBernard Dan\u003c\/p\u003e  \u003c\/div\u003e \u003cp\u003e\u003cb\u003eProfessor Peter Rosenbaum MD FRCP(C)\u003c\/b\u003e is Professor of Paediatrics at McMaster University and the CanChild Centre for Childhood Disability Research, Ontario Canada.\u003c\/p\u003e \u003cp\u003e\u003cb\u003eProfessor Gabriel Ronen MD MSc FRCP(C)\u003c\/b\u003e is Professor of Paediatrics at McMaster University and McMaster University Children's Hospital, Ontario, Canada.\u003c\/p\u003e \u003cp\u003e\u003cb\u003eEric Racine PhD\u003c\/b\u003e is Director of the Neuroethics Research Unit, Associate Research Professor and Associate Director, Academic Affairs of the Institut de recherches cliniques de Montréal, Quebec, Canada.\u003c\/p\u003e \u003cp\u003e\u003cb\u003eProfessor Bernard Dan MD PhD\u003c\/b\u003e is Professor of Neurophysiology and Developmental Neurology at the Université libre de Bruxelles (ULB), and Director of Rehabilitation at Inkendaal Rehabilitation Hospital, Belgium.\u003c\/p\u003e \u003cp\u003e\u003cb\u003eJennifer Johannesen MsC\u003c\/b\u003e is an author, writer, speaker, and parent.\u003c\/p\u003e","brand":"Mac Keith Press","offers":[{"title":"Default Title","offer_id":47989167849701,"sku":"NP9781909962637","price":58.0,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/1842\/7735\/files\/9781909962637.jpg?v=1761783065","url":"https:\/\/k12savings.com\/es\/products\/ethics-in-child-health-isbn-9781909962637","provider":"K12savings","version":"1.0","type":"link"}