{"product_id":"disability-visibility-isbn-9781984899422","title":"Disability Visibility","description":"\u003cb\u003eA groundbreaking collection of first-person writing on the joys and challenges of the modern disability experience: \u003ci\u003eDisability Visibility \u003c\/i\u003ebrings together the voices of activists, authors, lawyers, politicians, artists, and everyday people whose daily lives are, in the words of playwright Neil Marcus, \"an art . . . an ingenious way to live.\" • \u003cb\u003eEdited by MacArthur \"Genius Grant\" Fellow Alice Wong\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003e“Shares perspectives that are too often missing from such decision-making about accessibility.” —\u003ci\u003eThe Washington Post\u003c\/i\u003e\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003eAccording to the last census, one in five people in the United States lives with a disability. Some are visible, some are hidden--but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together an urgent, galvanizing collection of personal essays by contemporary disabled writers.There is Harriet McBryde Johnson's \"Unspeakable Conversations,\" which describes her famous debate with Princeton philosopher Peter Singer over her own personhood. There is columnist s. e. smith's celebratory review of a work of theater by disabled performers. There are original pieces by up-and-coming authors like Keah Brown and Haben Girma. There are blog posts, manifestos, eulogies, and testimonies to Congress. \u003cbr\u003e\u003cbr\u003eTaken together, this anthology gives a glimpse of the vast richness and complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own assumptions and understandings. It celebrates and documents disability culture in the now. It looks to the future and past with hope and love.\u003cp\u003e\u003ci\u003eIntroduction by Alice Wong \u003c\/i\u003e\u003c\/p\u003e\u003cp\u003ePART 1: BEING\u003c\/p\u003e\u003cp\u003e\u003ci\u003eUnspeakable Conversations\u003cbr\u003e\u003c\/i\u003eHarriet McBryde Johnson\u003c\/p\u003e\u003cp\u003e\u003ci\u003eFor Ki’tay D. Davidson, Who Loves Us\u003cbr\u003e\u003c\/i\u003eTalila A. Lewis\u003c\/p\u003e\u003cp\u003e\u003ci\u003eIf You Can’t Fast, Give\u003cbr\u003e\u003c\/i\u003eMaysoon Zayid\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThere’s a Mathematical Equation That Proves I’m Ugly—Or So I Learned in My Seventh-Grade Art Class\u003cbr\u003e\u003c\/i\u003eAriel Henley\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThe Erasure of Indigenous People in Chronic Illness\u003cbr\u003e\u003c\/i\u003eJen Deerinwater\u003c\/p\u003e\u003cp\u003e\u003ci\u003eWhen You Are Waiting to Be Healed\u003cbr\u003e\u003c\/i\u003eJune Eric-Udorie\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThe Isolation of Being Deaf in Prison\u003cbr\u003e\u003c\/i\u003eJeremy Woody, as told to Christie Thompson  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eCommon Cyborg\u003cbr\u003e\u003c\/i\u003eJillian Weise\u003c\/p\u003e\u003cp\u003e\u003ci\u003eI’m Tired of Chasing a Cure\u003cbr\u003e\u003c\/i\u003eLiz Moore\u003c\/p\u003e\u003cp\u003ePART 2: BECOMING\u003c\/p\u003e\u003cp\u003e\u003ci\u003eWe Can’t Go Back\u003cbr\u003e\u003c\/i\u003eRicardo T. Thornton Sr.\u003c\/p\u003e\u003cp\u003e\u003ci\u003eRadical Visibility: A Disabled Queer Clothing Reform Movement Manifesto\u003cbr\u003e\u003c\/i\u003eSky Cubacub\u003c\/p\u003e\u003cp\u003e\u003ci\u003eGuide Dogs Don’t Lead Blind People. We Wander as One.\u003cbr\u003e\u003c\/i\u003eHaben Girma\u003c\/p\u003e\u003cp\u003e\u003ci\u003eTaking Charge of My Story as a Cancer Patient at the Hospital Where I Work\u003cbr\u003e\u003c\/i\u003eDiana Cejas\u003c\/p\u003e\u003cp\u003e\u003ci\u003eCanfei to Canji: The Freedom of Being Loud\u003cbr\u003e\u003c\/i\u003eSandy Ho\u003c\/p\u003e\u003cp\u003e\u003ci\u003eNurturing Black Disabled Joy\u003cbr\u003e\u003c\/i\u003eKeah Brown\u003c\/p\u003e\u003cp\u003e\u003ci\u003eLast but Not Least —\u003c\/i\u003e \u003ci\u003eEmbracing Asexuality\u003cbr\u003e\u003c\/i\u003eKeshia Scott \u003c\/p\u003e\u003cp\u003e\u003ci\u003eImposter Syndrome and Parenting with a Disability\u003cbr\u003e\u003c\/i\u003eJessica Slice  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eHow to Make a Paper Crane from Rage\u003cbr\u003e\u003c\/i\u003eElsa Sjunneson\u003c\/p\u003e\u003cp\u003e\u003ci\u003eSelma Blair Became a Disabled Icon Overnight. Here’s Why We Need More Stories Like Hers.\u003cbr\u003e\u003c\/i\u003eZipporah Arielle\u003c\/p\u003e\u003cp\u003ePART 3: DOING\u003c\/p\u003e\u003cp\u003e\u003ci\u003eWhy My Novel Is Dedicated to My Disabled Friend Maddy\u003cbr\u003e\u003c\/i\u003eA. H. Reaume\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThe Antiabortion Bill You Aren’t Hearing About\u003cbr\u003e\u003c\/i\u003eRebecca Cokley\u003c\/p\u003e\u003cp\u003e\u003ci\u003eSo. Not. Broken.\u003cbr\u003e\u003c\/i\u003eAlice Sheppard\u003c\/p\u003e\u003cp\u003e\u003ci\u003eHow a Blind Astronomer Found a Way to Hear the Stars\u003cbr\u003e\u003c\/i\u003eWanda Díaz-Merced\u003c\/p\u003e\u003cp\u003e\u003ci\u003eIncontinence Is a Public Health Issue—And We Need to Talk About It\u003cbr\u003e\u003c\/i\u003eMari Ramsawakh\u003c\/p\u003e\u003cp\u003e\u003ci\u003eFalling\/Burning: Hannah Gadsby, \u003c\/i\u003eNanette\u003ci\u003e, and Being a Bipolar Creator\u003cbr\u003e\u003c\/i\u003eShoshana Kessock\u003c\/p\u003e\u003cp\u003e\u003ci\u003eSix Ways of Looking at Crip Time\u003cbr\u003e\u003c\/i\u003eEllen Samuels\u003c\/p\u003e\u003cp\u003e\u003ci\u003eLost Cause\u003cbr\u003e\u003c\/i\u003eReyma McCoy McDeid  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eOn NYC’s Paratransit, Fighting for Safety, Respect, and Human Dignity\u003cbr\u003e\u003c\/i\u003eBritney Wilson\u003c\/p\u003e\u003cp\u003e\u003ci\u003eGaining Power through Communication Access\u003cbr\u003e\u003c\/i\u003eLateef McLeod\u003c\/p\u003e\u003cp\u003ePART 4: CONNECTING\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThe Fearless Benjamin Lay: Activist, Abolitionist, Dwarf Person\u003cbr\u003e\u003c\/i\u003eEugene Grant\u003c\/p\u003e\u003cp\u003e\u003ci\u003eTo Survive Climate Catastrophe, Look to Queer and Disabled Folks\u003cbr\u003e\u003c\/i\u003ePatty Berne, as told to and edited by Vanessa Raditz\u003c\/p\u003e\u003cp\u003e\u003ci\u003eDisability Solidarity: Completing the “Vision for Black Lives”\u003cbr\u003e\u003c\/i\u003eHarriet Tubman Collective\u003c\/p\u003e\u003cp\u003e\u003ci\u003eTime’s Up for Me, Too\u003cbr\u003e\u003c\/i\u003eKarolyn Gehrig  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eStill Dreaming Wild Disability Justice Dreams at the End of the World\u003cbr\u003e\u003c\/i\u003eLeah Lakshmi Piepzna- Samarasinha  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eLove Means Never Having to Say . . . Anything\u003cbr\u003e\u003c\/i\u003eJamison Hill  \u003c\/p\u003e\u003cp\u003e\u003ci\u003eOn the Ancestral Plane: Crip Hand- Me Downs and the Legacy of Our Movements\u003cbr\u003e\u003c\/i\u003eStacey Milbern\u003c\/p\u003e\u003cp\u003e\u003ci\u003eThe Beauty of Spaces Created for and by Disabled People\u003cbr\u003e\u003c\/i\u003es.e. smith\u003c\/p\u003e\u003cp\u003e \u003c\/p\u003e\u003cp\u003e\u003ci\u003eAbout the Editor \u003c\/i\u003e\u003c\/p\u003e\u003cp\u003e\u003ci\u003eAbout the Contributors \u003c\/i\u003e\u003c\/p\u003e\u003cp\u003e\u003ci\u003eFurther Reading\u003c\/i\u003e\u003c\/p\u003e\u003cb\u003eONE OF \u003ci\u003eTHE PROGRESSIVE\u003c\/i\u003e'S BEST BOOKS OF THE YEAR • ENTROPY'S BEST OF NONFICTION\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003e“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” \u003cb\u003e—\u003ci\u003eChicago Tribune\u003c\/i\u003e\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003e“Shares perspectives that are too often missing from such decision-making about accessibility.” \u003cb\u003e—\u003ci\u003eThe Washington Post\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/b\u003e“Implicitly (and sometimes explicitly) makes the case for acknowledging and accommodating society’s overlooked population of disabled people.” \u003cb\u003e—\u003ci\u003eThe New York Times Book Review\u003c\/i\u003e\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003e“An exemplary collection. . . . This month’s #RequiredReading.” \u003cb\u003e—\u003ci\u003eMs. Magazine\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/b\u003e“A raw, emotional collection, an investment in the power of storytelling to foster vibrant connections, and an unapologetic rejection of ‘internalized ableism’. . . . The 37 powerful stories in \u003ci\u003eDisability Visibility\u003c\/i\u003e reveal the depth of everyday courage and the extraordinary human capacity to find humor in the face of life’s adversities.” \u003cb\u003e\u003ci\u003e—\u003ci\u003eShelf Awareness\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/i\u003e\u003c\/b\u003e“Roughly 15 percent of people around the world have a disability, and yet their stories are often never told. Alice Wong’s anthology, \u003ci\u003eDisability Visibility\u003c\/i\u003e, brings their narratives front and center with the goal of showcasing the wide range of modern disability experiences. . . . Ultra-impressive.” \u003cb\u003e\u003ci\u003e—\u003c\/i\u003eShondaland, \"10 Books Set to Become the New Feminist Classics\"\u003ci\u003e\u003ci\u003e\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/i\u003e\u003c\/b\u003e“By its very nature, the disability community is incredibly intersectional and diverse, including people from all walks of life, backgrounds, and cultures. \u003ci\u003eDisability Visibility\u003c\/i\u003e reflects that diversity with its contributors, giving . . . a look at a wide range of experiences and types of disability.” \u003cb\u003e\u003ci\u003e—\u003c\/i\u003eBook Riot\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003e“Alice Wong . . . has long been at the forefront of the disability justice movement.” \u003cb\u003e—Bitch Media, “17 Books Feminists Should Read in June”\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003e“More resonant than ever. In this kaleidoscopic collection, Wong and her contributors provide not just a snapshot of what disability has meant in the past 20 years, but an urgent invitation to take that understanding forward. . . . A landmark resource for understanding disability.” \u003cb\u003e\u003cb\u003e—\u003ci\u003eAutostraddle\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/b\u003e\u003c\/b\u003e“Diverse and poignant. . . . I was deeply moved by more pieces than I could name.” \u003cb\u003e\u003cb\u003e—Shir Kehila, \u003ci\u003eColumbia Journal\u003cbr\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/b\u003e\u003c\/b\u003e“Every piece in \u003ci\u003eDisability Visibility\u003c\/i\u003e evokes . . . tenacity, some gut-wrenching and others inspiring. . . . The range of subjects is impressive: assistive technologies, carceral injustice, fashion, homophobia and heterosexism, medical care and medical abuse, organizing strategies, psychotherapy, racism, relationships, sex, and sexism.” \u003cb\u003e\u003cb\u003e\u003ci\u003e\u003cb\u003e—\u003ci\u003eThe Progressive\u003c\/i\u003e\u003c\/b\u003e\u003c\/i\u003e\u003c\/b\u003e\u003c\/b\u003e\u003cbr\u003e\u003cbr\u003e“Celebrates and documents the lived experiences, power, and culture of the disabled community.” \u003cb\u003e\u003cb\u003e\u003ci\u003e\u003cb\u003e—\u003ci\u003eMorning Brew\u003c\/i\u003e \u003c\/b\u003e\u003c\/i\u003e\u003c\/b\u003e\u003ci\u003e\u003cbr\u003e\u003c\/i\u003e\u003c\/b\u003e\u003cbr\u003e“Wong’s discerning selections, bolstered by the activism that shines through, will educate and inspire readers.” \u003cb\u003e—\u003ci\u003eKirkus Reviews\u003c\/i\u003e\u003c\/b\u003e \u003cb\u003e\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003e“These essays are the heart, the bones, and the blood of Disability Rights.”\u003cb\u003e \u003ci\u003e—\u003c\/i\u003eGaelynn Lea, musician and activist\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003e“To Alice Wong, words like \u003ci\u003ediversity\u003c\/i\u003e and \u003ci\u003eintersectionality\u003c\/i\u003e aren’t just buzzwords. They are marching orders. Everyone should take in the wisdom woven throughout this book.”\u003cb\u003e —W. Kamau Bell, host of \u003ci\u003eUnited Shades of America\u003c\/i\u003e\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003e“A celebration and a source of deep education for many to bear witness (and feel seen by) the vastness of disabled stories, voices, and backgrounds.”\u003cb\u003e —Jennifer Baker, editor of \u003ci\u003eEveryday People: The Color of Life\u003cbr\u003e\u003c\/i\u003e\u003cbr\u003e\u003c\/b\u003e“As a Deaf Asian American, it wasn’t until recent years that I started considering myself disabled. This is a very informed starting point for anyone who, like myself, would like to get a better understanding of disability as a massive and beautifully nuanced spectrum.”\u003cb\u003e —Christine Sun Kim, artist\u003cbr\u003e\u003cbr\u003e\u003c\/b\u003eAlice Wong was a disabled activist, media maker, and research consultant based in San Francisco, California. She was the founder and director of the Disability Visibility Project, an online community dedicated tocreating, sharing, and amplifying disability media and culture. Alice was also the host and co-producer of the Disability Visibility podcast and co-partner in a number of collaborations such as #CripTheVote and Access Is Love. From 2013 to 2015, Alice served as a member of the National Council on Disability, an appointment by President Barack Obama. She died in 2025. For more: disabilityvisibilityproject.com.","brand":"Vintage","offers":[{"title":"Default Title","offer_id":46302004084965,"sku":"NP9781984899422","price":19.0,"currency_code":"USD","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/1842\/7735\/files\/9781984899422.jpg?v=1767725175","url":"https:\/\/k12savings.com\/es\/products\/disability-visibility-isbn-9781984899422","provider":"K12savings","version":"1.0","type":"link"}